Warriors at the Water

I’ve sat down to write today and found that I just can’t. I was going to do my usual frivolous summary of my week and another look at my incompetence at actually doing the blog writing thing, in part three of ‘diary of beginning a blog‘.

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The reason I can’t write is because my head and heart are too full of some news about a friend of my Dad. How can I possibly spend time on writing my nonsense when there are so many more important things on which I could be spending my time. I have been reminded not only that time is so very precious, but that how we spend it is so very important.

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You see my Dad’s friend, has been diagnosed with motor neurone disease (MND). This is a progressive neurological condition that causes gradual weakness and wasting of the muscles, affecting the way he will walk, talk, eat and breathe. There is no cure although most patients have a team of supportive health professionals to help manage the condition. Ultimately the focus will be on the quality of his life as the quantity of time he has left is unknown.

I have only met him and his family once. I remember them being nice. I remember one of his two daughters had an earache. I remember that they had a beautiful house and garden.

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Six years later he is facing a life-limiting diagnosis. I do not know the reality of his day-to-day life, but I will always remember the admiration I feel now that he has chosen to dedicate some of his time to organising an event to raise money for motor neurone disease.

He has inspired my sixty year old parents to join a fundraising event called ‘Warriors at the Water’. My parents do not partake in any form of organised exercise and have a choice of a 23 mile sponsored cycle or a 10 mile run/walk. I wanted to be able to write something a little light-hearted about my poor parents completing this challenge whilst still acknowledging the importance of their reasons for doing so. Clearly I haven’t.

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I am sad that he has this diagnosis. I am proud of my parents supporting this cause. I feel humbled and a little embarrassed that I spend some of my precious time writing because I enjoy  it, rather than to serve any of the purposes that inspired me to start in the first place.

So today forgive me for a more somber post. Tomorrow I will write about the beautiful moments that have brightened my week, but just now that didn’t feel like the best use of my time.

Further information

Motor neurone disease association

If you would like further information or to support the Warriors at the Water event here is a link to the official page:

Warriors at the Water

Mami 2 Five

Brilliant blog posts on HonestMum.com

11 thoughts on “Warriors at the Water

  1. WhatLauraLoves March 23, 2015 / 12:43 am

    Oh bless his heart, thats so sad 😦 Such a lovely thing for your parents to do to support the cause xxx

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    • tenminutesspare March 23, 2015 / 12:04 pm

      Yes really very sad. I’m amazed that he’s been able to organise the event though and impressed my parents are going to do it too.

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    • tenminutesspare March 23, 2015 / 8:33 pm

      Yes absolutely. I know from my work and various life events just how unpredictable life can be, but on maternity leave I feel I’m in a bit of a protective bubble. This terribly sad news just really made me stop and reflect.

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  2. Lisa@intotheglade March 25, 2015 / 12:03 am

    I was a PA for a judge once who was diagnosed with MND at a ridiculously young age. He had to retire before he was 60. Typically, he was the best boss I have ever had and I have a few good ones. He was compassionate to everyone who came before him and his mind was on top of his game but his body let him down. So very very sad! But this diagnosis has brought out the best in your parents, you must be very proud of them x

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    • tenminutesspare March 25, 2015 / 7:34 pm

      It really is a terribly sad condition. Sorry to hear about your boss. Yes I’m full of admiration that even at this difficult time my Dad’s friend is making this huge effort to raise money for charity.

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  3. Mini Travellers March 25, 2015 / 3:04 pm

    Life can be very cruel but fabulous that people are pulling together at this time of need. #sundaystars

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  4. mummyofboygirltwins March 26, 2015 / 1:53 pm

    That is so sad 😦 Sorry to hear this. Our friend recently passed away from it and it has affected the family deeply. We feel like this a lot too lately – maybe it happens when you become parents? makes you hold them that little tighter? Thanks for linking up #sundaystars

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    • tenminutesspare March 27, 2015 / 11:42 am

      So sorry to hear about your friend. Yes I know what you mean become a parent has definitely altered the lens through which I see the whole world now. X

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  5. Katy (What Katy Said) March 27, 2015 / 11:31 pm

    You are raising awareness just by sharing this story. So sad to hear about it, your parents are doing a great thing by joining in with the cause x

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    • tenminutesspare April 28, 2015 / 7:34 am

      So sorry I don’t know how I missed replying to your comment. Belated thavk you so much for taking time and for your kind words

      Like

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