I’ve sat down to write today and found that I just can’t. I was going to do my usual frivolous summary of my week and another look at my incompetence at actually doing the blog writing thing, in part three of ‘diary of beginning a blog‘.
The reason I can’t write is because my head and heart are too full of some news about a friend of my Dad. How can I possibly spend time on writing my nonsense when there are so many more important things on which I could be spending my time. I have been reminded not only that time is so very precious, but that how we spend it is so very important.
You see my Dad’s friend, has been diagnosed with motor neurone disease (MND). This is a progressive neurological condition that causes gradual weakness and wasting of the muscles, affecting the way he will walk, talk, eat and breathe. There is no cure although most patients have a team of supportive health professionals to help manage the condition. Ultimately the focus will be on the quality of his life as the quantity of time he has left is unknown.
I have only met him and his family once. I remember them being nice. I remember one of his two daughters had an earache. I remember that they had a beautiful house and garden.
Six years later he is facing a life-limiting diagnosis. I do not know the reality of his day-to-day life, but I will always remember the admiration I feel now that he has chosen to dedicate some of his time to organising an event to raise money for motor neurone disease.
He has inspired my sixty year old parents to join a fundraising event called ‘Warriors at the Water’. My parents do not partake in any form of organised exercise and have a choice of a 23 mile sponsored cycle or a 10 mile run/walk. I wanted to be able to write something a little light-hearted about my poor parents completing this challenge whilst still acknowledging the importance of their reasons for doing so. Clearly I haven’t.
I am sad that he has this diagnosis. I am proud of my parents supporting this cause. I feel humbled and a little embarrassed that I spend some of my precious time writing because I enjoy it, rather than to serve any of the purposes that inspired me to start in the first place.
So today forgive me for a more somber post. Tomorrow I will write about the beautiful moments that have brightened my week, but just now that didn’t feel like the best use of my time.
If you would like further information or to support the Warriors at the Water event here is a link to the official page: